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How were the guidelines created?

Inclusion International and Down Syndrome International's networks worked together to create the guidelines.

350 organisations from 100 different countries contributed to the work. 

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We got the information we needed by:

  • Collecting stories through a global survey in 10 languages online and in Easy Read. 

  • Supporting our members to run 60 consultation meetings with self-advocates to learn about their experiences

  • Asking for feedback from experts on topics like inclusion of people with higher support needs 

  • Working with a reference group of people with intellectual disabilities, their families, and other experts to help review the guidelines and give feedback at every stage

  • Testing the guidelines through 7 projects to make sure the advice was good. 

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