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Understanding Support

Woman in a wheelchair receiving support from her mother

1

For people with intellectual disabilities, families are often their first and most important supporters.  

 

However, anyone can learn to be supportive of people with intellectual disabilities.

 

Support usually does not take any special skills other than respect for the rights of people with an intellectual disability and a willingness to be flexible. 

2

Everyone who is working with people with intellectual disabilities should understand good support.

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People with intellectual disabilities told us that having good support makes sure that:

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  • they understand what is happening around them 

  • they are included and involved

  • they are developing new skills

  • they have the time they need

  • they are listened to and can say what they think

  • their decisions are respected

  • they can do their jobs or fulfil their tasks to the best of their ability

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Woman presenting to a group with a lightbulb icon overhead.

3

People with intellectual disabilities told us that the most important qualities of a good support person are:  

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  • a good listener

  • friendly

  • have experience and knowledge about the work they are supporting with

  • trustworthy

  • encouraging skill development

  • supportive of decision-making

  • understand what support is needed and when

  • respectful

  • patient

  • able to explain things clearly using everyday language

Illustration showing symbols for listening, positivity, and support.

4

It is everyone's responsibility to adjust the way that they work with people with an intellectual disability

 

Although many times a person may have a support person they work closely with it is not the role of one person to act as a go-between.

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For example, in a meeting that includes a person with an intellectual disability, everyone must speak in an accessible way so that the person is included, not rely on a support person to 'translate'. 

Diverse group in a meeting showing inclusive support.

5

Inclusive organisations should be able to recognise and challenge poor support and empower people with intellectual disabilities to do the same.

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People with intellectual disabilities say that poor support is when:

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  • people make decisions for them without including them

  • their supporters control what they do and when

  • their supporters overprotect them or treat them like children

  • they do not understand what is happening or why

  • they are not part of what is going on and can’t join in

  • they are not listened to

  • the supporter talks over them or answers for them

  • the supporter does things for them or to them not with them

  • the support is not about what they want or need but about what the supporter wants to do
     

A support person speaking over the person they support
A support person not listening to someone when they are talking to them

6

Make sure that the person with an intellectual disability is always in control of their support. 

 

Often people with intellectual disabilities are not involved in who is chosen to support them or part of deciding how they will be supported. 

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People with intellectual disabilities should always be part of any conversations or decisions about their support.

A man with a lightbulb and check mark.

Useful resources

Checklist icon with a green checkmark.

Good Support guide

The Listen Include Respect Guidelines were created with financial support from:

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Logo of inclusive futures uk aid
Logo of Inclusion International
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Logo of Down Syndrome International
Logo of the Higher Council for the rights of persons with disabilities
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©2022 by Inclusion International & Down Syndrome International

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